A mother has been tasked with one of the most difficult decisions in the world and that entails delivering some heartbreaking news to her young daughter.
The mom revealed how her 10-year-old daughter is suffering from a rare illness that is yet to have any positive form of therapy attached. And surprisingly, she is just one of the only three people in the entire world to have the condition.
Now the single mom who hails from Melbourne is revealing how she is preparing her young child for the challenges that lay ahead of her.point 420 |
This includes a reminder that her life is short and won’t be like her friends.point 70 | The thought of such an incident arising has really left viewers devastated as they can only imagine how the young girl would end up feeling.point 186 | 1
Recalling the awful chat she had, the mom explained how hard it was to tell her child named Bronte that she was suffering from a deadly disease called Juvenile Onset ALS. It’s another name reserved for progressive motor neuron disease and is always deemed to be the most fatal condition of them all by medical experts.
The condition comprises a gene mutation that makes the person’s health worsen with time. And that includes affecting so many of their movements such as breathing.
The mom named Bronwyn Cousins says that the whole process of testing took such a long time. She feared that it would come out to be this and that is exactly what happened in the end.
“I could not believe it. The whole process of testing took so long and I was devastated”- the mom explained. And what was worse is how she chose to inform her child about the reality when it was her school holidays. It was an agonizing experience for both of them and she hopes that no parent has to ever make a call like this.
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